Transitioning to Adult Life with PWS – a symposium for parents and support providers

DAY 1 – Fri 18th October – for support agencies and providers.
DAY 2 – Sat 19th October – for parents.

If you want to learn more about how Prader-Willi syndrome affects transition, and important considerations, this is the event for you!

Programme topics include:

What is transition and why are we talking about it? | An overview of PWS and the transition phase in PWS. | The impact of PWS and adolescence on transitioning. | Entitlements, accessing support and making it work. | Supporting families. | Creating opportunities, facilitating inclusion and enabling aspirations. | Tips for transition to a residential support service. | Balancing rights and independence with health and safety. | The importance of good health and mental wellness during transition. | Financial arrangements, supported decision making and guardianship. | When things go wrong. | Working together.

PROGRAMME

To view our preliminary programme, please click here to download programme flyer or click on the image below.

Please register here: www.trybooking.com/nz/TSP

FAMILY DINNER

There will be a subsidised social dinner being held after the symposium on Saturday evening ($20pp). This will start approx 6pm / 6.30pm (TBC). Anyone attending the symposium on Saturday is welcome to book a dinner ticket, but this is also open to anyone else in the region who would like to attend.

Numbers will need to be confirmed with the hotel prior to the event, so dinner tickets need to be ordered in advance through the event booking site.

FLIGHT SUBSIDIES FOR FAMILIES

The following maximum amounts are based on current Air NZ prices for families travelling to Auckland Saturday morning and returning on Sunday, with carry on luggage and no seat selection. Please note that flight prices may increase and booking early is advised. Please look for cheaper options where possible – Jetstar are more economical and can be booked one way, i.e. return flights on Sunday may be a better option via Jetstar.

From Wellington $250
From Christchurch $221
From Nelson $318
From Queenstown $330
From Dunedin $279
Please enquire about other departure cities.

Please note that PWSA(NZ) reserves the right to request a refund of any flight subsidies paid if families choose to cancel their registration or not attend this event. Families may wish to consider travel insurance or airline flexi bookings.
Please send your flight bookings with your account details to: jo.davies@pws.org.nz

ACCOMMODATION

Registered families travelling from outside the region may be able to stay in one of our reserved rooms for this event (limited number available). Rooms are available for one night (currently reserved for Saturday 19th October). If you would like a room, please make a request to: jo.davies@pws.org.nz  confirming which night is required.

Families are welcome to stay a 2nd night at own cost – please advise if a second night is required.

Please let us know as soon as possible about accommodation (at time of registration).

We would like to thank IPWSO and Friends of IPWSO(USA) for grant funding toward this event.