We have recently held Young Families Weekends approximately every 2 years. Our latest weekend for families of newly diagnosed or young children was held at the Top 10 Holiday Park in Christchurch. Both adults and children enjoyed meeting new people…
Following the success of our previous Tweens and Teens Weekend in 2017, we recently held another weekend, this time in Wellington. Our weekend programme was full of activities which included lots of sight-seeing around our capital city and we were…
There is evidence that for people with PWS it is beneficial to continue treatment with growth hormone therapy even after they have reached their final height. To learn more about growth hormone treatment for teens and adults with PWS, visit our GH…
Thank you to all the families and carers who joined us at YMCA Camp Adair, Hunua, Auckland. We think it was our biggest camp yet with 93 people booked to attend on the Saturday! It was lovely to catch up…
May is international PWS Awareness Month. Each year we focus on spreading awareness during May with the belief that awareness leads to increased understanding and acceptance. There are lots of ways you can spread awareness - you may want to…