We held our first transition event during October, with one day focused on support agencies and providers, and the other day focused on families. We hope the event was beneficial to those who attended, but I think it was also…
APPWS2024 was jointly hosted by PWS Australia and PWRFA (Prader-Willi Research Foundation Australia), August 30th - 31st, 2024. A number of delegates attended from New Zealand, who were mostly speaking, or members of the organising committee. There was also a…
Our Family Camp finally took place after a 3 year gap due to Covid disruptions. It was lovely to return to MiCamp Taupō where the sunshine came out for us once again. The activities differed slightly to our previous camp,…
On the weekend of September 17th and 18th, our Young Families Weekend finally took place after unfortunate Covid-19 postponements - it was fantastic to be able to connect with others again in person. The weekend was attended by several families…
Together with the PWS Associations of Australia, Malaysia and Thailand, we held our first virtual conference in October 2021, which was also the first Asia Pacific conference to be co-organised by 4 countries. From attendee feedback received, it seems that…
IPWSO's Clinical and Scientific Advisory Board have produced some excellent new guides for doctors and health practitioners to aid the medical evaluation of patients. They provide an overview of the most common and serious medical issues affecting people with PWS…
At the end of May, we enjoyed a weekend in Wellington attended by 12 of our tweens and teens with an accompanying parent. Many of these teens know each other quite well now as 'regulars' at these events, but it's…
We invited our adult members with PWS to a Leadership and Social Weekend which was held Oct 16th - 18th 2020, at The Surrey Hotel in Auckland. The programme was aimed at developing advocacy and leadership skills and enabled us…
Just a couple of weeks before our world changed momentously with the impact of Covid-19, we were able to enjoy a sunny weekend together on the alluring shores of Lake Taupo. It was the perfect site for our family camp,…
Whilst attending the IPWSO conference in Cuba, Julia and Dane Fuller, from New Zealand, were very fortunate to be able to interview expert endocrinologist, Dr Jennifer Miller. The interview contains useful information for families as Dr Miller discusses growth hormone…