Your Association

PWSA(NZ) was established in 1989 as a parent support network, originally under IHC. We have served as an incorporated society with a governing board since 1991, and with charitable status since 2008. With a range of membership options available, our membership continues to grow, comprising parents, carers, support service personnel, professionals and adults living with PWS. The PWSA does not have a national office but operates nationally, currently employing 2 part-time staff. We receive some funding from a contract with Whaikaha to provide disability information and advisory services (DIAS), and occasional funding from successful applications to grant providers and charitable trusts.
Donations are important in assisting us to continue our work and are very gratefully received. Registered Charity Number: CC46009.

Mission Statement

To enhance the lives of New Zealanders living with Prader-Willi syndrome by:

• providing advocacy, education and support services,
• collaborating and affiliating ourselves with other organisations with similar objectives, both in New Zealand and overseas,
• encouraging research, projects, and the exchange of ideas and experiences that are pertinent to PWS and build knowledge and understanding.

Click here to read our 2023 Annual Performance Report.