Prader-Willi Syndrome (PWS) is a rare and complex neurodevelopmental disorder which occurs in around 1 in 16,000 births and may affect approximately 200 New Zealanders.
PWS alters functioning of the hypothalamus in the brain causing a wide range of symptoms which include impacts on: cognition, emotional regulation, growth, muscle development, metabolism and appetite – people with PWS often expereience a constant hunger. Each individual is affected to varying degrees by each symptom. Learn more ›
April 5, 2023
The supermarket shelves become increasingly full of chocolate Easter goodies in the weeks leading up to Easter (or even for months?) Anticipation about the treats that Easter may bring can create much excitement for all children, let alone individuals and…
Read more ›March 28, 2023
Our Family Camp finally took place after a 3 year gap due to Covid disruptions. It was lovely to return to MiCamp Taupō where the sunshine came out for us once again. The activities differed slightly to our previous camp,…
Read more ›October 21, 2022
Halloween is growing in popularity in Aotearoa New Zealand, making it increasingly difficult to avoid for those who choose not to participate. Fortunately, trick or treaters will usually only call on the houses that indicate they are participating by leaving…
Read more ›Our next Family Camp is taking place Friday 21st – Sunday 23rd March at MiCamp Taupō. Although our previous 2 camps have been held at MiCamp, we have a new, exciting programme for 2025 which promises to be different! Family…
Read more ›IPWSO is partnering with Prader-Willi Syndrome Association USA (PWSA | USA) and the Foundation for Prader-Willi Research (FPWR) to host United in Hope – an International PWS Conference to be held June 24-28, 2025 in Phoenix, Arizona.The conference theme, “United…
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