PWS Association (NZ)

Formed in 1989 by a group of five concerned parents, our Association is first and foremost a parent support group providing knowledge, advocacy, and support for all families and those who work with PWS.  Membership now stands at approximately 130.

Advocacy
The Association offers an advocacy service to help support you through your child's transition stages - kindergarten, school, secondary schools, special needs, transition into the workforce etc

Resources
We have a wide range of resources including pamphlets, videos, tapes, booklets, texts, newsletters, and audio tapes.  Many of these are from the most recent Australasian conferences.

Parent Contacts
We have parent contacts in all areas and can put you in touch with a family with a similar aged child as your own.

Annual Family Convention
Each year we have a family Convention, held at different locations throughout the country.  This is usually 2-3 days where parents, siblings, those with PWS, family, can meet, talk, attend workshops, listen to experts, and make friends.  We usually hold our Annual General Meeting at the same time as the Convention.

Newsletter
Our quarterly Newsletter, "Pickwick Papers" is sent to all members of the Association and includes up-to-date information from around the world.

Subscription
Annual subscription is $NZ20.00, payable to the Prader-Willi Syndrome Association (NZ) Inc, P O Box 143, Masterton

Email us:  pwsanz@wise.net.nz

 

News & Conferences
Find news articles and conference details here
Links
Links to other PWS Organisations throughout the world
About the PWS Association
Background of the PWS Association in New Zealand, its resources, services, and contact.
 
PWS New Zealand - Supporting People with Prader-Willi Syndrome and Their Families
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