Guidelines for Professionals

 
Guidelines for Medical Professionals
For a clinical diagnosis, the following is a consensus diagnostic criteria for Prader-Willi Syndrome. Authors: Holm et al. Published 1993, Pediatrics 91, 398
Growth Hormone Therapy
There is now well-established research world-wide that supports the evidence that GHT not only increases height (linear growth) but also does much to improve body composition.
Ghrelin
Recently a lot of information has been circulating about a hormone called "ghrelin" which has been found to interfere with the ability to lose weight. The sensation of hunger is extremely powerful. We all experience it and we believe those with PWS experience it even more strongly and constantly. Feeling hungry can result in irritability, anxiety, stress in the best of us. The nature of that powerful stimulus has, until now, never been clearly identified.
The Genetics of PWS
By Linda Keder, Editor, The Gathered View (Reproduced with permission from The Gathered View)
When the medical world first learned about Prader-Willi syndrome in 1956, doctors had no idea what caused people to have this collection of features and problems that we now know as PWS. It is only in the past 20 years that researchers have discovered the genetic changes on chromosome 15 that are responsible for the syndrome. In 1981, Dr. David Ledbetter and his colleagues reported a breakthrough discovery
PWS look-alike disorders
In recent years, Prader-WiIIi syndrome has gained recognition as an �obesity� syndrome while the others remain less recognized. Often the national office receives calls from parents and professionals dealing with children who have some of the characteristics of PWS, but for apparent reasons do not have the syndrome.
 
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